National Organization for Rare Disorders (NORD) organises Rare Breakthrough Summit 2021

The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events in rare disease, bringing together rare disease community stakeholders, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases…

Virtual Round Table: The future of rare diseases in Europe

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community in the context of review of the European legislation on paediatric medicines (EC 1901/2006)…